It is a very sad time for Cystic Fibrosis Australia and the cystic fibrosis community as a whole … on the 2nd March we lost our darling Ann Maree.
Over the past few months Ann Maree valiantly fought leukaemia before slipping away into the silent night. It was a brave and feisty fight and exactly what we expected from Ann Maree.
To her family Arthur, Amanda and Louis we offer our most heartfelt condolences and hope that their enduring love and wonderful reminiscences of Ann Maree give them strength at this difficult time.
Family, friends and colleagues will gather together at 1pm on Friday 11th March to celebrate Ann Maree’s life at Castlebrook Memorial Park, 712-746 Windsor Road, Rouse Hill NSW 2155.
Cystic Fibrosis Australia has established a scholarship in Ann Maree’s name and her family has requested people donate to this important and lasting tribute instead of sending flowers. Donations can be received at http://www.everydayhero.com.au/event/annmareescholarship . The scholarship will fund a bright young researcher in the CF field.
Thank you Ann Maree for your dedication to the cystic fibrosis cause, your commitment to the work done by CFA and your infectious camaraderie that was ever present.
Your family, friends and the CF community are blessed for your having enriched our lives. The void you leave behind will be forever filled with memories of your warmth and compassion and the joy you brought us all even as we miss you so very much.
Nettie and the team at CFA
CEO Update On ORKAMBI, 29 January 2016
Canadians over the age of 12 with two copies of the F508del mutation are celebrating this week the approval of Orkambi byHealth Canada. Read the latest from CFA CEO Nettie Burke
Welcome To The CF Federation, Australia
Cystic Fibrosis (CF) is the most common, genetically acquired, life-shortening chronic illness affecting young Australians today.
It primarily affects the lungs and the digestive system, however, it also affects a number of other organs and systems.
Complications increase with age, requiring ever increasing levels of (self) care and support.
On average one in 25 people carry the CF gene (most of whom are unaware they are carriers).
To find out more about CF click ABOUT CF on the toolbar above.
Cystic Fibrosis support services organisations exist in every major jurisdiction of Australia, with the exception of the Northern Territory.
People living with CF in the Northern Territory are often supported by one or more of the adjoining CF organisations.
To contact your nearest CF organisation click CONTACT US on the toolbar above.
Most CF organisations in Australia began as member peer-support and self-help groups, growing over time to member services associations.
Today nearly all of these are modern not-for-profit health support services and research organisations involved with every aspect of living with
Cystic Fibrosis in their jurisdictions, including providing support services, raising public awareness, promoting carrier screening,
supporting research and lobbying for better health and wellbeing outcomes for those living with CF.
To find out more select the relevant entity on the map of Australia at top right of screen.
In 2003 Cystic Fibrosis Australia was incorporated as a company limited by guarantee with a number of the larger CF organisations as founding members and guarantors. Cystic Fibrosis Australia is focussed on national sponsorship, advocacy and awareness raising and on the promotion and funding of research.
All State and Territory CF organisations together with Cystic Fibrosis Australia work together collaboratively in a loosely coupled network to ensure better standards of care and quality of life for all Australians living with Cystic Fibrosis.
Funding for research into Cystic Fibrosis in Australia is through two principal foundations: the Australian Cystic Fibrosis Research Trust (ACFRT) and Cystic Fibrosis Research Limited. To learn more about CF research selectRESEARCH on the toolbar above.